When I started my blog 5 years ago, I had no idea how it would change my life and the lives of many of my fellow FND fighters. It was a challenge just to figure out how to get it working.

Technology isn’t becoming any simpler and I’m not getting any younger. It’s becoming more and more challenging to keep it running.

Five years ago, I was so excited to share what I’d learned about managing my FND. I had found a way back to normal function after years of disability. There were some resources finally available for those of us with FND, but not nearly enough. My blog was the first resource I knew of that shared the personal side of living with FND and managing it successfully.

There is still a long way to go, but new resources are popping up all of the time. Thankfully, there are now many stories shared by people with FND.

One of the best ways of managing my FND is to limit thinking about it. Focusing on the details of life is far more helpful for my brain than focusing on what isn’t working well in my body. Letting go of my blog and moving away from FND advocacy is another step in reclaiming a balanced, healthy life.

I’m old. I finally feel it. I never really felt old until I broke my hip 2 years ago. After that accident, I developed a bloodstream infection, a pulmonary embolism, and fluid build up around my heart. That accident nearly took my life. I won’t live forever. No one does. The question before me now is how do I want to spend the rest of the time I have?

It has been an honor and privilege to walk alongside many people with FND. My blog has introduced me to many wonderful people who care about FND, both patients and professionals. I’m so grateful to have had those experiences.

So now, whether I have a short time left or still another couple of decades, I have decided I want to focus on my family (I’m now up to 5 beautiful granddaughters!) and my hobbies. I have plenty to keep me busy!

If anyone would like to take over the FND Recovery website, please contact me at FNDRecovery@gmail.com. It’s a great domain name and I’d love to pass it along to someone else who wants to make an impact on the lives of people with FND.

Thank you for the memories, the kind comments, and support you’ve given me. It’s been life-changing.

Much, much love to each of you,